By Alisha Simpson-Watt, LCSW, BCBA, LBA
Opening Story
Daisha just received several referrals following her daughter’s autism diagnosis, including Applied Behavior Analysis (ABA), Speech Therapy, and Occupational Therapy. Finding speech and occupational therapy providers was relatively easy because she was familiar with several organizations in her community. Choosing an ABA provider, however, felt much more overwhelming. She wanted to make sure the provider not only had the right clinical expertise but also understood her family’s values, culture, and unique needs.
For many families, finding services is only the first step. Finding care that feels respectful, culturally responsive, and individualized can be an even greater challenge.
Autism Treatment and Families of Color
Research continues to show that Black and African American individuals with autism experience disparities in diagnosis, access to services, and long-term engagement in treatment.
According to Davis et al. (2025), one contributing factor is the lack of culturally responsive care within autism services. Families are more likely to remain engaged when providers acknowledge and respect their cultural beliefs, values, and experiences.
Culture shapes how families view child development, disability, communication, parenting, and healthcare. Because of this, it is essential that providers educate families about treatment options while also recognizing that every family approaches care differently.
Common Biases and Misconceptions in Autism Services
Seeking help for a child with autism can sometimes come with stigma. Family members, friends, or even professionals may suggest that treatment is unnecessary or that a child will simply “grow out of it.”
“They’ll grow out of it.”
Autism is a neurodevelopmental condition, not something children outgrow. While children can make tremendous progress with appropriate supports, autism itself does not disappear. Early intervention provides children with opportunities to build communication, social, adaptive, and emotional regulation skills during critical periods of development. Delaying support may allow challenges to become more pronounced or make certain learned behaviors more difficult to change over time.
It is also important to remember that there is no one-size-fits-all treatment plan. Every child has different strengths, needs, and goals.
Common therapies may include:
- Applied Behavior Analysis (ABA):
- A research-based approach that teaches meaningful skills and reduces challenging behaviors using evidence-based, positive teaching strategies.
- Speech Therapy:
- Supports communication skills, including speech, language comprehension, social communication, and alternative forms of communication when needed.
- Occupational Therapy (OT):
- Builds independence with daily living skills such as dressing, feeding, play, handwriting, emotional regulation, and sensory processing.
- Physical Therapy (PT):
- Improves strength, balance, coordination, posture, and gross motor skills.
- Social Skills Instruction:
- Helps children develop skills such as sharing, conversation, turn-taking, perspective-taking, and understanding social cues through individual or group instruction.
- Music and Art Therapy:
- Uses creative activities to encourage communication, emotional expression, self-regulation, and confidence.
- Animal-Assisted Therapy:
- Incorporates interactions with animals to support emotional well-being, motivation, confidence, and social engagement.
The best place to begin is by speaking with your child’s pediatrician or diagnosing provider to determine which services best match your child’s developmental profile.
Not every service is appropriate for every child. For example, some children may not yet have the foundational skills to participate successfully in a social skills group if they become overwhelmed around peers, have difficulty remaining near others, or engage in behaviors that may place themselves or others at risk. In these situations, individual therapy may help build prerequisite skills before transitioning into a group setting.
What to Look for When Choosing a Treatment Provider
Finding the right provider is about more than credentials. Look for professionals who demonstrate cultural humility, actively listen to your concerns, and are willing to learn about your family’s values and traditions without judgment.
During your first meeting, pay attention to how the provider interacts with your family. Do they ask about your goals? Are they respectful of household routines, such as removing their shoes before entering your home if that is your family’s custom? Do they encourage collaboration rather than assuming they already know what is best?
Consider asking questions such as:
- What is your approach to working with families from diverse cultural backgrounds?
- What experience do you have working with autistic children of different ages and support needs?
- How do you individualize treatment for each child and family?
- How are parents and caregivers involved throughout treatment?
- How do you adapt parent coaching to different parenting styles, family values, and cultural beliefs?
The answers to these questions can help determine whether a provider values collaboration, respects diversity, and is committed to individualized care rather than relying on assumptions or stereotypes.
Next Steps
If your child has recently been diagnosed with autism, remember that you have options. Finding the right provider may take time, but culturally responsive and family-centered professionals do exist.
You know your child best. Ask questions, trust your instincts, and advocate for the care your family deserves. Bias and stigma should never prevent your child from receiving high-quality, individualized support.
Frequently Asked Questions
Where can I learn more about autism treatments?
Start with:
- Your child’s pediatrician
- Your child’s diagnosing provider
- Autism Society Intervention and Therapies Resources: Intervention and Therapies | Autism Society
- Autism Speaks Autism Therapies and Intervention: Autism therapy and intervention | Autism Speaks
Will asking providers questions affect my child’s ability to receive services?
No. Asking questions is an important part of making an informed decision for your family. Providers who value family-centered, culturally responsive care welcome questions and parent feedback. If a provider becomes defensive or determines they are not the right fit, that simply means another provider may better meet your family’s needs.
What if I am unhappy with my child’s services?
You have options. You can:
- Speak with a clinical supervisor.
- Request a different provider within the organization.
- Seek services from another agency if your concerns are not addressed.
Your child’s treatment team should be collaborative and responsive to your family’s needs.
Where can I find autism resources specifically for Families of Color?
- The Color of Autism Foundation: Programs – The Color of Autism Foundation
- Autism Speaks How to Find An Autism Provider Who Understands Your Culture: How to find an autism provider who understands your culture | Autism Speaks
- Autism Speaks: Finding Your Community: Finding Your Community | Autism Speaks
- Autism in Black, Inc.: Home – Autism in Black Inc.
References
Autism Speaks. (n.d.). Autism Therapies and Intervention. Autism therapy and intervention | Autism Speaks
Autism Speaks. (n.d.). How to Find an Autism Provider Who Understands Your Culture. How to find an autism provider who understands your culture | Autism Speaks
Autism Speaks. (n.d.). Finding Your Community. https://www.autismspeaks.org/finding-your-community
Autism Speaks. (n.d.). Resource Guide. https://www.autismspeaks.org/resource-guide
Autism Society. (n.d.). Intervention and Therapies. Intervention and Therapies | Autism Society
Davis, A. M., Burks-Abbott, G., Merecias, O., & Swenor, B. K. (2025). Autism interventions designed or adapted for the Black/African American population: A systematic review. Autism, 29(1), 26-40. https://doi.org/10.1177/13623613241259910
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